Stronger Together 2019 Post-Event Survey
Please take a few minutes to fill out the survey below. We take your feedback into careful consideration when planning the next event! If you are completing this survey on your phone, please turn the device horizontally.
With which community did you identify at the conference? if more than one, please chose your primary role, ie. if you are an affected individual or family member, please select disease subtype.
Please rate the following:
Overall Venue (Renaissance Chicago Downtown Hotel)
Conference Location (Chicago)
Length of the Conference
Cost of Registration
If your child or children attended Kids Camp, please rate that, too.
Which was/were your favorite session(s) at the conference? You can still visit https://www.scifam.info/family-conference if you need a refresher on the sessions.
I attended the Scientific Symposium and that was my favorite
Pulmonary Care Plenary Session
Feeding and Nutrition Plenary Session
Orthopedics and Physical Therapy Plenary Session
LAMA2/NM Maxilofascial Surgery Solutions
Subtype-Specific Care Sessions
Subtype-Specific Research Update Sessions
Dick's Last Resort Group Dinner
After-Hours Social Time
SALT for Dads with Levi Gershkowitz
504/IEP: Getting the Most from Public School Support
Body Awareness Seminar (For Parents and Professionals)
Developing Tech for the Measurement and Care of Contractures
Let's Talk about Sex (for affected Young Adults, Adults, and their Partners)
Life Hacks & Navigating the Healthcare System
Rare Disease Legislative Advocacy
Sib Shop: The Sibling Experience
Social Security Benefits Explained
Special Needs Financial Planning
Transitioning through the Teen Years (For Parents and Professionals)
Transitioning to Adulthood (For Parents and Professionals)
Is there a session that wasn't part of the conference that you would have liked to attend?
For future conferences, would you be willing to pay more for additional group meals held onsite?
Would you attend a future conference that was again a collaboration among the same patient advocacy organizations?
Yes, definitely! I prefer this larger conference to smaller, subtype-specific gatherings.
Yes, but only if the specific subtype/condition that I am interested in did not offer a separate conference.
Yes, I plan to attend any and all conferences related to my subtype or condition of interest.
No, I prefer to attend conferences that are specific only to my subtype or condition.
No, I will probably not attend another neuromuscular conference.
Anything more that you'd like to add? Anything that you feel needs improvement or that you specifically enjoyed?
Name (optional; your answers will remain anonymous if left blank)
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