NUCDF Partner Network

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Welcome to the NUCDF Partner Network Training

The NUCDF Partner Network is sponsored by the Patient-Centered Outcomes Research Insitute (PCORI).

The goal of the Partner Network project is to prepare the UCD community to actively and confidently engage in Patient-Centered Comparative Effectiveness Research (CER).

We have already completed the first two foundational steps:

Step One: Establish a multi-stakeholder Advisory Board

Step Two: Build the Partner Network by recruiting key stakeholders across the community

Now we move to Step Three: Develop and Deliver Training in Patient-Centered CER.

In this phase, we will launch virtual training tailored specifically for our NUCDF Partner Network. These sessions are designed to build a shared foundation of knowledge, common language, and practical skills, enabling all stakeholders including patients, caregivers, UCD experts, metabolic dietitians, front-line care providers, and industry partners to collaborate effectively and confidently as we shape the UCD research roadmap.

This is Module 1 of 3 in the training series. This video-based module will take approximately 20 minutes to complete.

You are about to view a training video that includes a patient story.

Downloading the Listening Guide is optional, but it may help orient you to the key concepts covered in the training video.

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Downloadable training listening guideOptional

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Training Module 1

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Can you think of a PC-CER question that would impact UCD families?

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What are some areas where you wish you had more information to guide UCD care decisions?